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Evaluation & the Health Professions, Vol. 19, No. 2, 194-207 (1996)
DOI: 10.1177/016327879601900204
© 1996 SAGE Publications

A National Assessment of the Service, Support, and Housing Preferences by Persons with Chronic Fatigue Syndrome

Toward a Comprehensive Rehabilitation Program

Leonard A. Jason

Joseph R. Ferrari

Renee R. Taylor

DePaul University

Susan P. Slavich

Wichita State University

Cheryl L. Stenzel

Loyola University of Chicago

Persons with Chronic Fatigue Syndrome (PWCs) completed and returned by mail a brief survey of openand closed-ended items designed to assess their utilization and preferences for a variety of services. A total of 984 middle-aged adults diagnosed with Chronic Fatique Syndrome (CFS) from across North America returned the survey. During the past 12 months, many of these PWCs reported utilization of a primary care physician, gynecologist, CFS specialist, and self-help group to assist in their recoveryfrom CFS. Most PWCs believed it was important to educate both health-care practitioners and the general public about CFS. In terms of their desire for specific recovery needs, factor analysis of responses indicated that these PWCs preferred self-help/social support services and general advocacy services in the treatment of their illness. The implications of these results for developing rehabilitation programsforPWCs are discussed.


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